Heart Valve Voice



Heart Valve Voice US, a patient advocacy organization dedicated to improving health for people living with heart valve disease, received a grant from the Patient-Centered Outcomes Research Institute (PCORI) to convene a Stakeholder Advisory board to develop research questions that, if answered, would improve the lives of heart valve disease patients, survivors, and caregivers. RLA supported Heart Valve Voice by preparing background materials, recording the brainstorm sessions, and developing a summary report.

How We Helped

Over a period of 2 months, RLA integrated suggestions that arose from three Board meetings and an online survey of nearly 100 stakeholders into the final report that Heart Valve Voice submitted to PCORI.

Work Products and Links

Heart Valve Voice US Stakeholder Advisory Board: Recommendations for Comparative Effectiveness Research on Heart Valve Disease